Monday, May 9, 2016

Seventh Annual Diabetes Blog Week!!!

When I first started Diabetes Blog Week way back in 2010 I had no idea it would have such staying power.  Each year I become more and more grateful that so may of you continue to show so much support and enthusiasm for this event each year.  I’m also thankful for all of the help you’ve given, with topics for us to write about and suggestions to help things run more smoothly.  Diabetes Blog Week has continued to evolve and grow in a way I couldn’t have ever imagines.  And so I’m beyond excited to kick off the SEVENTH!!! Annual Diabetes Blog Week.  Here we go!


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What inspired Diabetes Blog Week?  For those of you who haven’t participated before, Diabetes Blog Week was originally inspired by a fiber-blogger event called Knitting and Crochet Blog Week.  When I participated that first year on my knitting blog I loved the way it united the community, and I knew I wanted to try to do the same for the DOC.


How does Diabetes Blog Week work?  The main idea for Diabetes Blog Week is that bloggers sign up to post about a set topic each day for a week.  This way, readers can jump around the DBlog Community and get a big variety of different perspectives on a single topic.  The hope is that new DOC connections are made, and that our voices are raised to spread a little more diabetes awareness.


When is Diabetes Blog Week?  The seventh annual Diabetes Blog Week  will take place next week, from May 16th through May 20th.


Where can I find the Diabetes Blog Week topics?  You can find the topics for next week on the Topics and Posts page.  They’ve been posted in advance, just in case you want to start drafting your posts this week.  (But please remember not to publish your post until that specific day!)   Use the topics as a starting point for your post each day and see where it takes you.  Write as much or as little as you like.  There are no right or wrong answers - just read over the topic and start blogging!  I've also included two wild card topics to choose from.  If one day’s topic doesn’t inspire you, feel free to post about one of the wild card topics instead.  Or, if you’d like to extend DBlogWeek to a full seven days, you can use the wild card topics as your weekend prompts


200x2005 Who can participate in Diabetes Blog Week?  DBlog Week is open to anyone who blogs about diabetes - be it Type 1, Type 2, LADA, gestational, etc., and it’s also for parents, spouses and caregivers to someone else with diabetes.  If you blog about diabetes in any capacity, please join us!  The more perspectives that are shared the more connections we can make and understanding we can foster.  If you don’t have a blog but have thought about starting one, now is the perfect time.  There are free blogging sites (such as Blogger or WordPress) that you can use to get started.


Can blogs done by groups, organizations and companies join?  I like to make Diabetes Blog Week as inclusive as possible, so yes, group blogs and professional blogs are welcome to join.  However, the posts must be written by a blogger with a diabetes connection.  Also product plugs / advertising will not be allowed.  Posts that do no adhere to this policy will be removed from the master link lists.  (More about those lists below.


What if I can’t write posts for all five days?  The idea for Diabetes Blog Week is that everyone who signs up to participate will post on all five days.  Although that is the goal, I absolutely understand that life sometimes gets in the way, so if you end up falling short of five posts that’s okay.  Diabetes can be stressful enough, so let’s keep DBlog Week fun and stress free.


How do I sign up?  Once again, I’ve created a form to submit your information.  Fill it out and you will be signed up and added to the Participant List within 24 hours.  There is a space on the form for you to let me know if you have any questions, and you can also email me at any time at DBlogWeek@bittersweetdiabetes.com.

Fill out my online form.


Will there be a master list of posts for each day?  There sure will!  Before things kick off on Monday will add daily Link Lists on the Diabetes Blog Week topics page.  Once you’ve published your post each day, be sure to add it to the that day’s list by entering your blog name and the url of that day's post.  This way we’ll have all posts linked in one central location, which makes it easier for people to hop around and read all of the posts.  Please do not “pre-post” your links - links may only be added on the day that we’re blogging about that topic and your post must be live on your blog when you link it.  (Early posts will be deleted from the list.)


How about a button or banner for my blog?  Why yes, of course!  If you’d like to display the button or banner on your blog you’ll find the HTML Codes below - just to make things a little bit easier.  Highlight the code in the box, then copy and paste it into the HTML section of your blog’s sidebar or post or where ever you want to display the graphic.

Grab the Banner
Diabetes Blog Week
 
Grab the Button
Diabetes Blog Week


What if I want to tweet or Facebook about Diabetes Blog Week?  That would be awesome, you can use the hashtag #DBlogWeek.


What else do I  need to know?  Great question.  I’ve tried to cover everything, but I’m sure I missed something.  So please leave any questions in the comments section below or email them to me at  DBlogWeek@bittersweetdiabetes.com.  I'll be sure to answer you as soon as I can.


Thank you all again for the overwhelming support during the last six Diabetes Blog Weeks, and I’m thrilled to be doing it a seventh time!

Monday, May 2, 2016

Welcome to May!!

So the month of May is here already.  It means flowers and warmer weather and nightfall happening a little bit later each day.  And in my world, it means Diabetes Blog Week.

200x200I want to thank everyone who took the time to fill out my DBlogWeek survey - there were more than 70 of you!  And I received so many fantastic suggestions.  Some I’ve already worked on and some I’m still trying to make happen.  Some may have to wait until 2017 (provided you guys want to do this again next year.)

But for now, some new things are in place.  First of all, Diabetes Blog Week will run Monday, May 16th - Friday, May 20th this year.  Almost 60% of you indicated that five days of blogging would work better for you than seven days.  I completely understand that!  Those of you who still want to blog a full seven days of posts can use the two wildcards as your weekend prompts.  In this way, I hope I’ve found a solution that works for everyone.

Another popular suggestion was to have more advanced notice of what the topics for the week will be.  With that in mind, I’ve published the topic list here - a week earlier than I normally release them.  I hope that’s helpful to those who want to get a jump on things.

It was also suggested that a Facebook page for Diabetes Blog Week would be helpful.  That’s a fantastic idea, and I’ve created it here!  All important information will be added when available.  Also, during DBlogWeek, each day's topic will be posted on the page.

I’m still working my way through the rest of the suggestions - I’ll be using as many as I can.  And stay tuned next Monday, when I’ll be posting more information and this year’s sign up form!

Thursday, March 31, 2016

The Betes - The Patient Voice . . .

Two weekends ago I attended The Betes Organization’s event, "The Patient Voice".  I went on behalf of (and with assistance by) DiabetesSisters, and I was excited to see other members of DiabetesSisters and of the DOC.

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But, to be honest, I wasn’t quite sure I’d “get” the event itself.  Don’t get me wrong, I loved and supported the idea of the event, which was to bridge the gap between patients and healthcare providers.  I watched Marina’s interview on TuDiabetes and was blown away by her passion and enthusiasm.  But the thing is, although I do have intermittent sparks of creativity, overall I don’t consider myself a very creative person.  So I was concerned I might not connect with the puppetry.  I was afraid the whole thing would kind of go over my  head. 

I could not have been more wrong.

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The first performance piece involved a heavy box and The Betes (hand)puppet.  From the minute Marina took the stage, I was drawn right in.  I laughed.  I nodded.  I choked back tears.  I sang along with everyone in the room.  That sounds corny, right?  But somehow, it wasn’t.  We all sang together about the weight of carrying diabetes (a la The Beatles) and it was amazing.  And this is coming from someone who DOES NOT sing.

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The second half was part of a new piece being created entitled “The Elephant in the Room”.  It deals with complications.  Emotionally, I didn’t react quite as deeply to this piece, probably because I haven’t really dealt with any complications (yet).  But it still resonated with me quite a bit.  Complications are a thing many of us don’t even want to thing about, much less openly discuss, so to see work being done the change that and the open the doors?  It was wonderful.

During the discussions that followed, I came to understand that these pieces seemed to touch different people in different ways.  Patients, healthcare providers, caregivers - what we saw meant different things to each of us.  But in the end, I believe we all were impacted by what we saw on stage and I think each of us left feeling a little bit closer to one another.

And in the end, that’s really what it’s all about, isn’t it?

Monday, March 28, 2016

Looking Ahead . . . .

April will be here at the end of the week, and then before we know it May will arrive.  Which means the seventh annual Diabetes Blog Week is just around the corner.

Online-Survey-IconSeven!  Wow, I never imagined, way back during that first Diabetes Blog Week in 2010, that #DBlogWeek would have such staying power.  Which makes me wonder, does it need to be updated?  What would make it run more smoothly?  What suggestions do you have for #DBlogWeek?  How can I make it better for everyone who participates or lurks?

And so, I’ve created a little survey to collect your opinions, ideas and suggestions.  You can find it here.  I’ve tried to make it short but inclusive, with space at the end to tell me anything else on your mind.  I can't promise I'll be able to make every suggestion happen, but I do promise to try my best.  Please take a minute to fill the survey out, so together we can make Diabetes Blog Week is the best it can be.  Thank you!!

Wednesday, March 23, 2016

Wordless Wednesday - Ooops . . .

That moment when you’re treating a low and decide to refill your “low bin” . . . .

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Jelly beans everywhere.  On the island and on the floor.  Also, not shown in this picture, under the stove, in the pantry and in the dining room.   It seriously looked like the Easter Bunny threw up.  And it took me FOR-EVER to get them all gathered and into the garbage.  I think my cat might still be batting a few around.

#lowproblems

Tuesday, March 22, 2016

Spinny Thoughts . . .

I’ve been attempting to write about this year’s Diabetes Unconference for over a week.  Every day I open a blank blog page and start typing.  I ramble and reflect and edit and write some more . . .  and in the end, I delete the whole thing and decided to try again tomorrow.  Sometimes, unfortunately, a well-crafted cohesive post just won’t come.  Instead I just have a bunch of spinny thoughts rolling around in my head.  And so, bullet points will just have to do . . .

  • This year’s Unconference felt different.  Not better and not worse, just different.  It wasn’t The First Year, so things felt more familiar this time around.  I knew how to get around the hotel.  And I had a better idea what to expect.
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  • Sessions with other PWDs, where the things we say go no farther than the space we are in, is important and much needed.  Even when the topics feel heavy and dark.  In fact, that is probably when it is most important.
  • And although things can get heavy and dark, things can get just as silly and goofy and light.  Thank goodness for that!!
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  • Red eye flights?  Not so much my thing.  And conferences on the West Coast, in general, will take me far longer to recover from than I anticipate.  (Daylight Savings doesn’t help matters either.)
  • Companies who sponsor conferences like this are awesome.  I’m thankful that they see the value in peer-to-peer support.
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  • Even if you’ve had diabetes since 1979, there are still new things to learn.

Disclosure:  I received travel assistance by way of a scholarship from DiabetesSisters, which helped me be able to attend the Diabetes Unconference in Las Vegas this year.

Monday, February 29, 2016

Bolus . . . .

I’m really good at multi-tasking.  However, I’m not so good at functioning in a pre-caffeinated state.  Which explains why I ran into a bit of trouble while trying to simultaneously brew the coffee and feed the cat on a recent morning.  I suddenly needed a third hand, but luckily my husband was standing in the kitchen with me.

CoffeeAndCat“Hold this?”  My request was met with a blank stare.

“HOLD THIS PLEASE!!”

As he reached out to take K.C.’s food dish, he commented “Your words say please but your tone says something else.”

“Because I asked for your help and you just stood there!!  I said 'hold this' and you just gave me a blank stare.”

“Oh.  (pause)  I thought you said 'bolus'.  I was waiting for you to tell me how many units to punch into your pump.”

Oops.  Maybe I’m not the only one who doesn’t do well in a pre-caffeinated state  . . .

Wednesday, February 24, 2016

Sick Day Plan . . .

Having a Sick Day Plan in place is one of the D-Shoulds for me.  You know, that list of things I’ve been told ALL PEOPLE WITH DIABETES SHOULD but somehow I kind of don’t always.  You know, things like change my lancet before each finger-stick (hahahahaha), never walk around without shoes on (hmmmm), don’t treat off my CGM (right) and always always wear medical I.d.  (even just around the house?).  And always have a Sick Day Plan in place.

Errr, well.  The thing is, I get a lot of colds.  A lot.  If someone even looks at me, I swear their cold germs rush over and take root in my system.  It’s been like this ever since I can remember and I just deal.  But I hardly hardly ever get a stomach virus.  Almost never!!  But yesterday was a different story.

intestinal-party-2400pxWhen Pete’s alarm went off yesterday and I couldn’t drag myself out of bed, I just figured I was tired.  I let myself sleep ( a perk of freelance / unemployment) and at 9 I finally got up and made some coffee.  But when the coffee didn’t stay down, I realized what was gong on.  And I thought about my Sick Day Plan.  Or actually,  my lack of one.

Luckily, I feel like I do know the basics through my interactions with the DOC.  I knew to check for ketones (negative, yay!), keep a  close eye on  my blood sugars (70s - 130, yay!) and stay hydrated.  By mid-morning I was able to keep down crackers and diet soda.  I didn’t bolus for the crackers until I knew they would stay.  And I had glucagon ready just in case things with my blood sugar went south.  All in all, I’d say I did okay.

But still, I think I should probably add a Sick Day Plan to the list of things to talk over at my next endo appointment.  Right?  Do you have a formal Sick Day Plan in place?  And if so, what does it include?