Wednesday, January 25, 2017

Diabetes Day Off....

“Closed”Pete and I have often discussed giving me a Diabetes Day Off.  Of course, it wouldn't really be a day off from diabetes because that just isn't about to happen any time soon.  But the idea is that Pete would take over all of my diabetes tasks for a day.  When my blood sugar needed checking, I'd give him the finger (so to speak) and he'd do the rest.  He would do all the carb counting and I'd happily let him program the bolus on my pump.  He would follow my CGM data on his phone.  I'd even put him in charge of a site change if I needed one.  Basically diabetes would be out of my hands (and hopefully off my brain) for one complete day.

As I've said, we've talked about this often.  He's even gone as far as to say "Let's give you that Diabetes Day Off on Saturday.".  But as soon as I agree, he begins to think of reasons to postpone.

I get it.  I'm sure the thought of doing diabetes is scary for him.  Insulin can be very dangerous, and too much or too little can have some very serious consequences.  I'm pretty sure he is terrified of really hurting me.  And if I take a moment to try to see it from his perspective, I totally get it.

So onward we go.  He is a fantastic supporter and he helps out a lot.  I often give him the finger (so to speak) and he'll do a sugar check.  When I'm low he'll get me the juice or candy.  But the overall diabetes management continues to be all mine, all day, every day.  And I guess I'm okay with that.  I don't want to put stress and pressure on him to take over when it makes him so uncomfortable.

It sure is nice to dream about a Diabetes Day Off though.....

Wednesday, January 4, 2017

Choosing UnConference

About a year ago I had a decision to make.  I could attend JDRF Government Day or I could attend The Diabetes UnConference.  They overlapped in 2016 so I could not attend both, as I had in past years.  It wasn’t an easy choice to make.

Government Day is a great event, focused on advocating to our elected officials in their offices on Capitol Hill.  We educate them about diabetes and the need for continued government funding.  We educate them on issues they will be voting on, explaining why these issues are so important to people with diabetes.  It is a great event and I’ve felt extremely lucky to be involved with it for several years.

The Diabetes UnConference is also a great event.  It is a peer to peer conference where the attendees set the agenda.  More importantly, the attendees are the experts.  We learn from each other.  We share openly and honestly with others who are going through many of the same things we are.

So, as you probably already know, I ended up picking the UnConference.  Both events were important and both were places where I felt I could make a difference.  But in the end, I thought about the huge backing and large reach that JDRF has.  I knew there were others who could attend Government Day in my slot.  They would do a great job getting our message across.  And they deserved their chance to attend.

On the other hand, my perspectives and experiences are my own.  I am the only one who can share them at the UnConference.  And if doing so helped just one person feel understood and less alone, then being there was necessary.  And so, I chose UnConference, and never regretted the decision for a minute.

This year I will be returning to the Diabetes UnConference as a facilitator.  I’m nervous, of course, but I’m so excited for the chance to hopefully help even more.  I’m grateful for the opportunity to help make the conference the best it can be for everyone attending.

Time is running out for you to choose UnConference.  The deadline to register is Tuesday, January 24th.  The deadline to book your hotel room at the special conference rate is just a week away on Tuesday, January 10th!!  So now is the perfect time to choose UnConference.  I'm sure you will find it the right choice.