Wednesday, July 15, 2015

10 Insane (but True) Things About Diabetes . . .

I’ll admit that my blogging mojo seems to be on Summer Vacation.  Try as I might, I can’t come up with anything to write about.  So in a moment of desperation (because OMG if I don’t blog about diabetes they might take it away from me)  (also, wouldn’t that be GREAT???) . . . anyway, in a moment of desperation I turned to Blog Topic Generators.  I didn’t really have high hopes that this would solve my problem but I typed in the word “diabetes” and hit the button.  To my surprise, a few fun ideas popped up!

Tango-Crazy-210 Insane (but True) Things” caught my eye right away.  Because really, diabetes is pretty insane, right?   So here are my 10.  Maybe you’ll find yourself nodding along.  Or maybe you’d like to add a few that I missed.  Or maybe you randomly stumbled across my blog, in which case I hope I’ve helped you learn some insane (but true) diabetes facts.

  1. The very medication that saves my life can very easily kill me.  -  What kind of sick joke is this, right?  Without a steady stream of insulin, I will die.  But dosing a bit too much insulin can also be lethal.
  2. Strangers (and  even people I know) seem to think it’s perfectly fine to tell me “diabetes horror stories”. - I really don’t understand what makes it okay to tell me about relatives with limbs chopped off or blindness or failed kidneys.  Sometimes I wonder if people do this for other illnesses too?  “Oh, colon cancer.  My grandmother had that and they removed part of her large intestine and she had to have a colostomy bag!”.  Please tell me people don’t say things like that - and please make them stop doing it about diabetes.
  3. When things go wrong, I get blamed. - The blame.  Oh the blame!!!  It sucks.  Blood sugars out of range?  Diabetes complications?  Must be because you aren’t taking care of yourself.  Again I have to ask if people do this with other illnesses?  “My uncle had skin cancer on his nose and they operated and it destroyed his salivary glands and for the rest of his life he couldn’t eat and was fed protein shakes through a feeding tube.  But, you know, he was a landscaper so he was in the sun all day long, so he really brought it on himself.”  Nobody would ever say that about skin cancer, right?  (Oh I sincerely hope not!!)  But it’s okay to tell a horror story with a side of blame about diabetes?  Come on, can we PLEASE stop doing this??
  4. Even though diabetes is an incurable chronic illness, people will tell me how to cure it. - Let’s hear it for the wonder cures!!  Cinnamon, okra, magic herbs, dancing naked under a full moon.  Once, while buying a JDRF sneaker at a pharmacy, the cashier proceeded to tell me that there is a cure for Type 1 in Europe and why I didn’t just go there?  I shutter to think what a statement like that does to the fundraising efforts . . . .  donate to Sneakers for the Cure?  No, just go to Europe!!
  5. I can be fine, and five minutes later I can be totally incoherent.  - Sometimes it’s scary how fast and severe a low can come on.  Toss in my hypoglycemic unawareness and the chance that I’ll randomly lose my ability to function at any point in the day increases.  Especially if I’m shopping at Target, am I right?
  6. The results often do not equal the effort. - I can do the exact same thing at the exact same time two days in a row, and go way high one day and way low the next.  Or I can have a day when I try really hard and still have crap blood sugars.  And I can totally half-ass diabetes management one day but find myself solidly in range.  Makes no sense!  It can also make motivation really hard to find sometimes.
  7. There is no finish line in diabetes and I can’t EVER have a day off.  - Yes, I know, this is what puts the “chronic” in “chronic illness”.  But think about it.  Since 1979, I’ve dealt with a condition that needs almost constant attention and is affected by a million different factors.  SINCE 1979!!!!  Not a single day off.  I did it yesterday.  I’ll do it today.  I’ll be doing it again tomorrow, and next week, and next year.  Frankly, if I think about this too much, it’s exhausting.
  8. Diabetes is hard on my body.  -  I have callouses on my fingertips from repeatedly lancing them to draw blood to check my glucose.  Every three days I jab the needle of an infusion set into my skin.  Every six days I do the same with my continuous glucose monitor.  For my first 28 years with diabetes, syringes were stabbed into me at least once a day and often almost a dozen times daily.  Bruises and scar tissue and red marks abound.  Medical devices must hang from even the most chic of outfits.  And let's not forget the toll diabetes takes on me internally, to my eyes and my heart and my nerves and every part of me.
  9. Diabetes is even harder on my mind. - The blame from Item 3?  It doesn’t just come from the outside world.  It also come from me.  When things go wrong I’m the first to blame myself.  Now let’s mix in some fear from Items 1 and 5.  Toss in some distorted body image from Item 8.  And let’s not forget some WTFedness from Items 6 and 7.  Mix it all together and it brings me to Item 10 . . . . which is . . . .
  10. Diabetes is just insanely hard.

12 comments:

  1. Dude, Target is the new insulin. (<3 this post)

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  2. #3. #4. And yes, Target lows are a real thing!

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  3. SO many of these items could have been written by me despite the fact that I have T2. Hugs.

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    1. I love that, because it also reinforces that all types of diabetes have so many relatable points.

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  4. You don't write every day, but when you do, it's super. Loved this post. Thanks.

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  5. Hah! The Target thing! No kidding! For me it is ALWAYS Victoria's Secret bra shopping! I plummet every darn time! I stand in that dressing room sweating as the bras stick to my body.... then sit and eat glucose tablets while some 18 year old, size 2 girl is asking, "Are those fitting? Would you like me to measure you??" through the door!

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  6. Can't tell you how many times I've nearly had to carry my kiddo out of Target. And at least once I put her in the cart (a tiny aged 12 chickie) and pushed her to the car. WTF?!! Sooo true. Don't get me started on IKEA. Glad you put out this post! Next post: 10 insanely good (but true) things that've come from having Diabetes. Can you do it? Are there 10?

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  7. So true on so many things, even for a Type 2.

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  8. Oh Karen, so very true... today was one of those days for me... all good food and a nice walk and what did I get???? blood glucose on 180-200 so easy to just give up and the heck with this... I am type 2 but still bothers me so much... I feel so like a failure...

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  9. As a T2 for the past 10+ years, I hear all the time about "cures". You know the ones; oh, just lose weight, drink this, do that, get stomach bypass surgery, et.al. I have started putting people in their place about those so called "cures".

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  10. Amen! Great list, every item is so true, especially #10! Can this post become viral? I feel like too many people think its easy living with diabetes and it's just NOT. We might make it look easy but it's not!

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